I recently found out that someone I know was diagnosed with SLE or Systemic Lupus Erythematosus. Her sister told me that her kind of SLE was very rare because it was attacking her central nervous system. The doctors said that she was fortunate to be diagnosed early because if her condition had gotten worse she would've turned into a vegetable. Now she's a research patient at the University of Chicago. She has all these doctors looking after her.

I'm sharing this with all of you because as a member of the import car culture, she deserves to have the support of her peers, even if the very same peers are unfamiliar faces.

Does anyone know of any local Lupus foundations? Talk groups? Stuff like that? If anyone can give me any insightful information about anything local that deals with Lupus, it would be much appreciated. I'm trying to organize something for my friend sometime by next year so any information, big or small, is welcome. Thanks.

 

I check this forum because of family in KS and MO. I don't know anything to share but send thoughts and best wishes from Texas for a positive outcome. Good luck.

 

I have a sister that was diagnosed with Lupus a few years ago. We've found this website very informational.

http://www.lupus.org/

 

Thanks jump23. I'm looking into it right now.